OTdirect: Links : Health : Specific Medical Conditions

Specific Conditions

Note that there are many more sites than we can list, and no doubt more will emerge than we can keep up with. The list below aims to point you in the direction of the best sites, most of which have further links to explore. Please let us know of other sites worthy of inclusion, especially those with a specific OT content or relevance. Press Apple-F or Ctrl-F to search this page.

National Institute of Neurological Disorders and Stroke
Your Orthopaedic Connection Public information site from the American Association of Orthopaedic Surgeons. General information and guidance, though the manual handling advice is a bit sketchy and in some places differs from the current best practice in UK.
AIDS see HIV
Amputation
- Limbless Association
- amputee-online.com includes Amputation - The Online Magazine for Amputees
Amyotrophic Lateral Sclerosis (ALS) (Sometimes called Lou Gehrig's disease)
- ALS Assoc. (US)
- World Federation of Neurology -- Amyotrophic Lateral Sclerosis
- See Also Motor Neurone Disease
Arthritis
- Arthritis Foundation
- Arthritis Research Campaign
- British Society for Rheumatology
- ArthritisCare
- American College of Rheumatology
- Arthritis Foundation of Ireland
- Arthritis Foundation (USA)
- Arthritis Canada
- International League of Associations for Rheumatology
- Arthritis Resource Centre (USA)
- Duquesne University Study of Rheumatoid Arthritis.
- University of Washington Fatigue Management Pamphlet (arthritis)
Ataxia Telangiectasia
- Ataxia-Telangiectasia Society
Back Pain
- Back Care (UK -- previously known as National Back Pain Association)
Blindness see Visual Impairment
Brain Injury see Head Injury
Brain Tumour
- Give Hope - Brain Tumour Support (UK)
Cancer
- CancerBACUP (UK) Excellent source of information and links
- Cancerweb (UK)
- National Cancer Institute , (US)
Cerebral Palsy
- Scope UK Cerebral Palsy Charity
Charcot Marie Tooth
- OTdirect Revision notes: Charcot Marie Tooth Disease (CMT)
- CMT International UK . National support group for people affected by Charcot-Marie-Tooth Disease (CMT) and their families and carers.
- Charcot-Marie-Tooth Association (US)
- Charcot-Marie-Tooth Association of Australia Inc.
Chronic Fatigue Syndrome
- ME Association UK Information and support for people with ME/CFS and their carers.
Colitis and Crohn's Disease
- National Association for Colitis and Crohn's Disease (NACC) [www.nacc.org.uk/]
Creutzfeldt-Jakob Disease (CJD)
- OTdirect Revision notes: Creutzfeldt-Jakob Disease (CJD)
- CJD Surveillance Unit (UK)
- Patients with new variant Creutzfeldt-Jakob disease and their families: care and information needs (comprehensive report from CJD Surveillance Unit, UK)
- Diagnosis, Treatment and Care of vCJD Patients Volume 8, Chapter 6 of the report of the BSE Inquiry (also available in PDF format)
- CJD Support Network (UK)
- Dept. of Health guidance on CJD for healthcare workers (UK)
- Human BSE Foundation (UK, set up by and for families of people with nvCJD)
- CJD Foundation, Inc. (US)
CVA see Stroke
Diabetes
- Diabetes UK (previously known as British Diabetic Association)
- American Association of Diabetes Educators (AADE)
Dementia
- Alzheimers Disease Society (UK)
- AlzheimerSupport.com
- Dementia Research Group (National Hospital for Neurology & Neurosurgery)
- 10-minute test for Alzheimer's (BBC News)
Dystonia (general)
- The Dystonia Society (UK)
Epilepsy
- British Epilepsy Association
- National Society for Epilepsy
- Epilepsy Association of Scotland
- Epilepsy Foundation
Friedrich's Ataxia
- Ataxia UK
- OTdirect Revision notes: Friedrich's Ataxia
- Friedreich's Ataxia Research Alliance (FARA) (US)
- Friedrich's Ataxia Factsheet (from Muscular Dystrophy Assoc., Australia)
- National Ataxia Foundation (US)
- Euro Ataxia (European Federation Of Hereditary Ataxias)
Guillain-Barré Syndrome
- Guillain-Barré Syndrome Support Group
Head Injury
- Brain Injury Rehabilitation Trust
- Traumatic Brain Injury Resource Guide Includes e-mail newsletter for monthly clinical updates.
- Headway Brain injury association with local support groups.
- Traumatic Brain Injury Model Systems
- Rehabilitation Research Centre for Traumatic Brain Injury and Spinal Cord Injury
- International Brain Injury Association
- Headinjury.com (US) Lots of resources for public and professionals.
- Brain Injury Association (US) Resources and articles for public and professionals.
- The Brain Injury Information Network
Heart Disease
- Heart Information Network
HIV and AIDS
- AEGiS : Huge, searchable information database on HIV and AIDS. Unlikely that you won't find what you're looking for here.
- The Body -- specialist health information for people with AIDS/HIV.
Huntington's Disease
- OTdirect Revision notes: Huntington's Disease
- Huntington's Disease Association (UK)
- Australian Huntington's Disease Association (Victoria) inc.
- Huntington Disease Society of America
- The Hereditary Disease Foundation
- Huntington Society of Canada
- CureHD
- International Huntington Association
- Caring for people with HD
- The UK Psychiatrists Huntington's Disease Group
Hydrocephalus
- Association for Spina Bifida and Hydrocephalus (ASBAH) UK support organisation and charity.
- International Federation for Hydrocephalus and Spina Bifida
- OTdirect Revision notes: Hydrocephalus
Meningitis
- Meningitis Trust UK Information and support for people affected by meningitis and their carers
Migraine
- Migraine Trust
Motor Neurone Disease
- Motor Neurone Disease Association (UK)
- Scottish Motor Neurone Disease Association
- Motor Neurone Disease Association of Australia (MNDAA) includes a comprehensive set of clinical guidelines for healthcare professionals
- International Alliance of ALS/MND Associations
- OTdirect Revision notes: Motor Neurone Disease (MND)
- See also Amyotrophic Lateral Sclerosis (ALS)
Multiple Sclerosis
- OTdirect Revision notes: Multiple Sclerosis
- Multiple Sclerosis Society(UK)
- Multiple Sclerosis (Research) Charitable Trust (UK)
- Federation of MS Therapy Centres
- Multiple Sclerosis International Foundation
- National MS Society (USA) (Includes live on-line patient education sessions and question & answer sessions)
- Multiple Sclerosis Foundation (US)
- International Multiple Sclerosis Support Foundation
- MS Ireland
Muscular Dystrophy
- Muscular Dystrophy Campaign (UK)
- Muscular Dystrophy Assoc. (Australia)
- Muscular Dystrophy Association (USA)
Myasthenia Gravis
- Myasthenia Gravis Association UK Information and support for people with MG and their carers.
Ostomies
- International Ostomy Association [www.ostomyinternational.org]
Parkinson's Disease
- Parkinson's Disease Society (UK)
- European Parkinson's Disease Association
- WeMove (Worldwide Education and Awareness for Movement Disorders)
- WHO factsheet
- National Parkinson Foundation (US)
- American Parkinson Disease Association
- Awakenings
- Parkinson's Disease Caregiver Information
- Brain.com has its own resource page on Parkinson's Disease.
- World Parkinson Disease Association
- Parkinsons Information
Primary Lateral Sclerosis (PLS) See Motor Neurone Disease
Progressive Muscular Atrophy (PMA) See Motor Neurone Disease
Progressive Supranuclear Palsy
- Society for Progressive Supranuclear Palsy, Inc. (USA)
Spina Bifida
- OTdirect Revision notes: Spina Bifida
- Association for Spina Bifida and Hydrocephalus (ASBAH) UK support organisation and charity.
- International Federation for Hydrocephalus and Spina Bifida
Spinal Cord Injury
- British Brain and Spine Foundation
- Spinal Cord Injury Update (University of Washington, US) Includes online newsletter and pamphlets. Excellent resource for background info, though more nursing/medical than OT.
- National Rehabilitation Centre for the Paralysed Rehab centre influenced by the work of the Dikoul Institute (UK, private sector).
Stroke
- The Stroke Association UK
- National Institute of Neurological Disorders and Stroke (US)
- The Internet Stroke Center (US)
Tourette's Syndrome
- Tourette Syndrome Association (UK)
Visual Impairment
- Action for Blind People

If you have any comments, corrections or suggestions about this page, please email me.

Last updated: 19th April 2004. Editor: Mike Griffin, OT (field of practice: community physical disability, UK). Any opinions expressed are the author's own unless otherwise stated. © Copyright OTdirect.co.uk 2004. All material is subject to copyright. Feel free to use it for any non-profit purposes, within your professional judgement, but commercial use is forbidden without permission.

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